CIDP ... Rocky's blog

Well, it's been awhile. Which means things have been going along pretty much 'as usual'.

Not any more, unfortunately.

I've had joint pain in my right hand. I thought that was probably a result of some sanding I'd been doing on a cane I wanted to refinish. Well, no ... it's the disease. After checking with others in the same boat as am I, I find that gnarly rheumatic looking hands are not at all unusual.

So I have more of that to 'look forward to'. Right hand, of course ... me who is so terribly right-hand dominant. Bummer!

But there's more ... as the TV pitchmen always say.

Now the numb shins are moving upward. Well, not the shins, of course! : ) The shins and outward sides of the lower legs are numb. Now, along with the "exercise burn" on the fronts of my thighs, there is numbness on the outward sides.

I have been in touch with a fellow in North Carolina whose CIDP is similar to mine, though his is somewhat more advanced than mine and has been stable for something like 17 years.

He stresses movement, gentle movement ... yoga, for instance. Something to keep the muscles and tendons from shrinking/tightening and making everything even worse. Makes sense. I must check out the pool therapy for arthritics offered by the YMCA. This, of course, means that I must find the extra funds and I must manage somehow to keep either my old car or some other used car that'll keep going and get me there as the YMCA is some distance from me.

Anyway, that's where we are now ...

Oh ... almost forgot ... also the dizziness at times. Apparently that happens as well, though I'd prefer to lay the blame on the medication, the neurontin.